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Unless otherwise expressly stated, all original material of any nature or type included in the Sanity Now weblog and any related pages, including the weblog's archives, is licensed under a Creative Commons License. No content may be used without the express, written permission of the author.
I am the mother of two beautiful miracle children. This used to be my infertility blog, but as we are no longer trying to conceive, this will now be the place I come to talk about the issues in my life - the main ones revolving around my children. My daughter has diagnosed with Asperger's Syndrome, Sensory Processing Disorder, ADHD, Anxiety and Mood Disorder-NOS. My son was also recently diagnosed with ADHD and Asperger's. Comments are welcome, but I do ask that you be respectful when you do.
Creative Commons License
Unless otherwise expressly stated, all original material of any nature or type included in the Sanity Now weblog and any related pages, including the weblog's archives, is licensed under a Creative Commons License. No content may be used without the express, written permission of the author.
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About Me
- PCOSMama
- I'm a 30-something wife and stay at home Mom with PCOS, who has undergone fertility treatments to conceive my now 8 year old daughter and 5 year old son. We have truly received our share of miracles! The challenges are not over yet though... both of my children have been diagnosed on the Autism Spectrum. Read to find out more!
6 comments:
I'm sorry. We need to find you a support group or SOMETHING. I'll look into it. XOXO
I found an SPD parent group listed for my city and emailed the contact, but I haven't heard back yet. I hope the group is still active!
Haven't really looked into autism support groups. I kind of feel like I don't belong, since my girl is so clearly high-functioning that she doesn't appear at all autistic unless you catch one of her fits where she reverts to acting like a 2 year old and loses her ability to communicate what the problem is.
What about the autism blogosphere. They're really just as well organized as we are (http://autismblogsdirectory.blogspot.com/)
Lollipop I will definitely check that out. Thanks!
hang in there sis....
I haven't had a chance to thoroughly read through your posts yet pcosmama, but I skimmed over your second-to-last one about the dx and not feeling comfy in autism support groups b/c your daughter is so high functioning. We were in a similar situation with our son, but an Aspergers (AS) dx puts you in with the Aspie parent crowd - and it's a big one.
I'm no expert, but I do know that girls with AS are viewed by professionals to present very differently than boys, and are widely regarded to be misdiagnosed most of the time. If your doc thinks she's AS but can't label her that because of the DSM, keep in mind that the DSM does NOT account for the differences between boys and girls.
I would suggest you do a bit of detective work on the AS issue by heading to Amazon and searching "girls" and "aspergers" - there are a number of excellent books on the subject of how girls differ with this dx. It may help you more clearly understand not only your daughter (b/c pddnos is so non-specific) but also may help you find the parent community that can understand and support you best.
If, after your research, you feel she is AS, you don't need an official dx to join the Aspie parent crowd for support - virtually and in real life, if there's an AS organization in your area.
Once we got our AS diagnosis, I became involved with our local AS organization and now sit on the Board of Directors. It has made a big difference in terms of feeling that I have people who understand our crazy life, and getting practical advice on what to expect and how to best support my son.
Talk to you soon,
Caitlin
www.welcome-to-normal.com
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